Author Topic: Calling all Diagnosed Blasto Survivors  (Read 7578 times)

Offline MurphyMann

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Calling all Diagnosed Blasto Survivors
« on: September 23, 2011, 03:25:15 PM »
Hello there,

I was wondering if people who have had blasto can give me an idea of some of thier symptoms when they first started feeling ill.  I just had a beloved pet pass away from confirmed Blastomycosis...and my 20 year old neice who was also out in the area that my dog contracted the blasto is having problems with chest pains.

She went to the doctors and emergency several times.  Her heart rate varied between 100 and 140...her blood pressure was also very high....and she struggled to take breaths...every once and a while she gets very sharp pain in her lungs.  They did blood work and xrays which showed nothing.  They prescribe Naproxen an anti-inflammatory drug that does not help.  She went to a specialist who believes that she might have inflammation in her ribs and wants to give her cortisone injections in between all her ribs.

As we have a dog with confirmed blasto...we asked if it could be this...and the doctor said no and that she would be much sicker if that was the case. 

Could anyone share thier thoughts on the subject?  We just do not know what to do at this point.   :'(

Thank you everyone and god bless...

Offline woodstalkbaby

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Re: Calling all Diagnosed Blasto Survivors
« Reply #1 on: September 24, 2011, 12:54:51 AM »
They told my Daughter Kayla was sick for about a month in and out of the Drs. office and the ER. I was getting pretty upset for they would give us new meds all the time. Finally after about a month I demanded them to do something. She kept having high fevers 104, chest pains, trouble breathing and and loosing waight like 30 lbs in a month. It took them 8 days and her kidneys starting to fail for them to send her to the U of M childrens hospital. They fogured it oout in a day with a spudem sample. If she is can give them a sample like that it is easy to test. Good luck and keep pushing them ar they will drop the ball like they did with my daughter. 

Offline Connie

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Re: Calling all Diagnosed Blasto Survivors
« Reply #2 on: September 26, 2011, 11:00:56 AM »
Hi I was misdiagnosed a couple times. I went to the hospital  with a very sharp pain in my right side just under my breast area. I had a fever, sweating and a cough. They told me I had a pulled muscle without even doing any tests. I went back to hospital a couple days later , they did some tests and said I had pnemonia. Gave me meds and sent me home. A couple days later I was gasping for air, fever at 104.  My oxygen level fell to 25%. This time had a  team of docs and nurses on me.. I never left the hospital for 2 months except to be airlifted to a bigger hospital. I went home after 2 months  then back in a few weeks later for another month. I would insist in getting checked especially if the dog had it too. When  I got blasto 3 dogs had it at the same time as me. A vet can find out the results for a pet faster than a doc can find it for us. Just insist as if not treated  well we wouldn't want to see the outcome. I was the first person in this area to survive blasto. Everyone before me died. I had it in 1999/2000. Now they know what to look for and test people.

Offline cee

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Re: Calling all Diagnosed Blasto Survivors
« Reply #3 on: November 28, 2011, 09:54:27 PM »
Hi: my husband was recently on life support for an undiagnosed respiratory problem.  He has had pneumonia off and on about every 4 months for about 3 years now.  In July, he suddenly could barely breath any longer, he had lost weight and appetite drastically, constantly tired, aching in all joints and by the time he went to the e.r. he was actually having spasmatic muscle twitching? His eyes were swollen almost shut and then his eyeballs seemed to protrude outside that.  It was horrific to watch.  He was given massive antibiotics but didn't seem to respond. Then after several days he was within minutes of a cardiac arrest.  I insisted he be put on life support to buy him a few more days in order to find out what was wrong. At this point nothing showed in any tests but he did have nodules in his lungs.  My daughter and daughter-in-law went online and ran across hystoplasmosis.  Since we'd just travelled to iowa we were convinced it was some type of fungus.  The E.R. doctor was more than willing to try an anti-fungal and he was put on intraveneous and immediately started showing improvement.  I believe he was given this for about 5 days but then his liver count elevated and he was taken off it.  A few days later after 3 weeks in intensive care he was able to come home.  My concern is he has never been given an exact diagnosis nor was he given any long term anti fungals  and now, since the lung nudules have all cleared (but one small scar?) his doctor sees no need for any long term therapy as he is not certain it even was a fungus.  Lately I have noticed that his dry hacking cough tho' not as often nor as severe as before has returned and in the past few days he is becoming hoarse again.  Can anyone tell me what is the usual treatment or length of and does this often re-occur?  I live in central Ontario and would like to know if anyone is aware of a Doctor that specializes in this area of medicine?  any information will be much appreciated.

Offline woodstalkbaby

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Re: Calling all Diagnosed Blasto Survivors
« Reply #4 on: November 29, 2011, 10:48:37 PM »
My daughter Kayla was treated for 11 months on a med called itraconisol (not sure on the spelling). She went through hell and back but is better now. Go with your gut feelings cause I have to tell you the Dr's around her don't have a clue and I had to do alot of fighting with them for my daughter to get proper care.

Offline cupcake105

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Re: Calling all Diagnosed Blasto Survivors
« Reply #5 on: December 01, 2012, 11:36:55 PM »
Its very disheartening to see there are so many people out there with misdiagnosis. When I first got sick in 91 i never heard of it and believe me neither had the doctors. my first symptoms were lung and chest pain. I never get colds so it seemed very odd, it then progressed to kidney failure of my right kidney and recently I found out 1/3 of my stomach is dead tissue with no known cause. I suffer night sweats from time to time. The worst for me is the pain in my muscles. Sometimes if can feel like someone holding a lighter under my skin or like my muscles are being torn off the worse is the spasms that start randomly and you can see the muscles moving under the skin. I have noticed when my skin is on fire and you would swear it is lesions will appear there sometimes within hours or days. I have found somethings make it worse like eating sugar or acidy drinks. Cranberry juice only makes it worse not better. I know when my blasto started there was always blood in my urine test although i would have no infection. I was given an easy trick to stop your kidney and bladder from burning which is very common I have noticed in reading many many posts. I hope this helps and keep fighting

Offline Connie

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Re: Calling all Diagnosed Blasto Survivors
« Reply #6 on: December 05, 2012, 04:56:15 PM »
I had sharp pains in lungs, high fevers of 104, oxygen level fell to25%, very difficult breathing. cold sweats. The hospital in my area could not pick up the blasto even after the hospital I was airambulanced to diagnosed me. The vets here found it in 3 dogs that got it the same time as me.Vets are more equiped than hospitals in this area unfortunatly as blasto is not a reportable  illness in humans as it is in animals.

Offline cupcake105

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Re: Calling all Diagnosed Blasto Survivors
« Reply #7 on: December 14, 2012, 06:26:55 AM »
Hello there,

I was wondering if people who have had blasto can give me an idea of some of thier symptoms when they first started feeling ill.  I just had a beloved pet pass away from confirmed Blastomycosis...and my 20 year old neice who was also out in the area that my dog contracted the blasto is having problems with chest pains.

She went to the doctors and emergency several times.  Her heart rate varied between 100 and 140...her blood pressure was also very high....and she struggled to take breaths...every once and a while she gets very sharp pain in her lungs.  They did blood work and xrays which showed nothing.  They prescribe Naproxen an anti-inflammatory drug that does not help.  She went to a specialist who believes that she might have inflammation in her ribs and wants to give her cortisone injections in between all her ribs.

As we have a dog with confirmed blasto...we asked if it could be this...and the doctor said no and that she would be much sicker if that was the case. 

Could anyone share thier thoughts on the subject?  We just do not know what to do at this point.   :'(

Thank you everyone and god bless...

Offline cupcake105

  • Newbie
  • *
  • Posts: 7
  • Im new here, need some support
Re: Calling all Diagnosed Blasto Survivors
« Reply #8 on: December 14, 2012, 06:29:03 AM »
Its very disheartening to see there are so many people out there with misdiagnosis. When I first got sick in 91 i never heard of it and believe me neither had the doctors. my first symptoms were lung and chest pain. I never get colds so it seemed very odd, it then progressed to kidney failure of my right kidney and recently I found out 1/3 of my stomach is dead tissue with no known cause. I suffer night sweats from time to time. The worst for me is the pain in my muscles. Sometimes if can feel like someone holding a lighter under my skin or like my muscles are being torn off the worse is the spasms that start randomly and you can see the muscles moving under the skin. I have noticed when my skin is on fire and you would swear it is lesions will appear there sometimes within hours or days. I have found somethings make it worse like eating sugar or acidy drinks. Cranberry juice only makes it worse not better. I know when my blasto started there was always blood in my urine test although i would have no infection. I was given an easy trick to stop your kidney and bladder from burning which is very common I have noticed in reading many many posts. I hope this helps and keep fighting