Author Topic: blasto patient seeking answersI  (Read 4506 times)

Offline peektwins

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blasto patient seeking answersI
« on: August 24, 2011, 02:12:57 PM »
I had a ct scan last week.  My infectious disease dr. said results were showing millions of nodules identical to the last one 6 months ago.  In May my antigen test had come down from 60 to 3.96.  She said this was terrific.  I was expecting the ct to look a lot better.  She said it could be scarring.  I won't hear the antigen results as it takes a while but my question to any of you is this.  Has anyone ever been told your lung ct looks identical to a previous one 6 months before and do you rely solely on the antigen result?  I've been on the liquid sporanox for 14 months.  Would appreciate your input.

Offline Lolasmom

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Re: blasto patient seeking answersI
« Reply #1 on: August 27, 2011, 05:39:34 PM »
60???  Oh my goodness.   My dogs lungs were filled.  I was told it was scaring and I needed to make sure she stayed out of humidity.  She does great.  She goes running every morning now, but the minute it starts to heat up shes at the door ready to come into the A/C and lounge on the couch for the rest of the day.   Not a bad life.  Congratulations with your recovery, that 's terrific.

Offline Connie

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Re: blasto patient seeking answersI
« Reply #2 on: September 09, 2011, 03:59:59 PM »
it has been 11 years now since I was cleared of blasto. Both my lungs were full. I am now again going under several tests as my lungs seem to be getting worse. I always had trouble dancing, walking long distances, and getting too emotional happy or sad  after having blasto and I would have trouble or stop breathing. this past summer has been extremely hard on my lungs thus all the testing. My lungs as my specialist says are scared for life. The true testing with me was the biopsies. They determine weather the blasto is gone. I did the itraconasol for 17 month. Hang in there.