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Author Topic: Blastomycosis in Northern Ontario  (Read 4328 times)

Doris3175

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Blastomycosis in Northern Ontario
« on: February 20, 2007, 02:52:11 PM »

Everyone should be aware this Blastomycosis should be recognized as a reportable disease!!
Please read and if you have ever heard of a similar situation or lived through or lost someone in a similar fashion please reply all information will be greatly appreciated
We just had a funeral for our brother who just died from Blastomycosis on January 28th 2007.  He was 29 and he left behind a 27 year old wife with 14 month old and 4 year old sons. We are a family of 8 and he was the youngest.

He started getting flue like symptoms around New Years and it progressed to vomiting, high fever, very bad cough.  He went to the ER  around the 2nd week of January and they gave him antibiotics. He was only able to work the first week of January. I must also mentioned that he had been type 1 diabetic for the last 8 years.

Then he went again about 5 days later he was barely able to talk he was out of breath couldn't sleep or eat and a fever of 102 F. My sister who is a registered nurse was sure they were going to admit him since he sounded like he was getting pneumonia. But no, he was sent home again with antibiotics,with no blood work, no x-rays what so ever. They said since he's vomiting so much the other antibiotics weren't taking effect.  I figure when a healthy, very athletic young diabetic man goes twice to the ER in a week they should at least pay attention. We come from a very small town and they know who the "regulars" are in the ER for him to go to the ER was a big thing.

Then on Tuesday January 23 2007 he went again, vomiting, fever and having lost 15 pounds and very weak, he said it felt like his heart was going to come out of his chest it was beating so fast. Now they admit him with a pneumonia but they still thought there was something else.  On Wednesday me, my husband and one of my sisters went to see him in hospital. We had to get all gounded up and masks and gloves and he had a one on one nurse with him.  He was just sitting there almost lifeless, with his heart rate never going under 130 and he had started to swell. It took all he had to look up at us and to spit up blood in his little tray.

I'm so glad I went that night because I got to tell him I loved him and my husband and I prayed with him, which we were very surprised that he accepted that we did. That night he was flown to Thunder Bay, Ontario Regional Health in ICU on a respirator.  We were relieved that he'd go to a better hospital and that he'd get to sleep for a couple days and regain his strength while they'd treat his pneumonia, which is what the doctors had told us. That would be the last time we saw our brother awake and alive.

Thursday morning January 25, his wife calls me in a panic, she had called the hospital to see how he was doing and to advise them to call her when they'd take him off the respirator..(Thunder Bay is a 6 hour drive from where we live) so that she could be there when they did.  Instead they tell her to come here as quickly as she could and that if the family could come too that they should.  He was in critical condition and may not make it through the day.  So we all made plans and left that day on our trip there my sister, the nurse, kept in contact with the hospital and advised us that it was Blastomycosis.

When we got there the sight was horrifying, he was placed on his stomach, we could only see the one side of his face which was so swollen and red he wasn't recognizable.  He also had a chest tube and all sorts of other lines going through him.  The respirator was going but his whole body was quivering from his fast heartbeat.  His oxygen saturation was in the 60's and at that time we didn't know but his blood gas levels were in the 40's.  When I touched him I felt he wasn't there anymore and so I asked the doctor who had just came in...If he comes out of this how will his brain function be and he just danced around it and never really answered me. Then the doctors held a family conference that night, we were 25 in that ICU waiting room. They informed us about everything that was going on and questioned us about what he did in the last few months and how he was feeling.  They had never heard of Blastomycosis from someone living in Northeastern Ontario. But we told them that he was a truck driver and that he hauled wood chips and that the first week of January he had hauled to Thunder Bay. They still didn't know what to make of it because usually they see Blastomycosis in the Kenora, Dryden area.

That night we all took turns staying with him during the night so that he would never be alone. Hoping that everything would be fine

The next day Friday the 26th 2007 the doctors told us expect the worst but pray for the best, he is young, athletic, he has never smoked and he is not needing any medication to maintain his blood pressure but he is very sick. They turned him on his back which increased his saturation a bit. They were seeing a bit of improvement.  On the Wednesday on his X-rays it showed that his left lung was infected by half but the ones on Friday morning showed that his whole left lung was infected as well as half his right.  The outcome was grim. Then they called late on Friday night saying that his organs were failing and his kidneys were not functioning properly that he was "systic or septic" I'm not sure of the wording, they were giving him a last ditch effort medication that is very expensive and that he needed to be on it for at least 96 hours and that it reduces mortality buy at least 20% but that there were risks of bleeding and he already was having trouble with the coagulation with his blood at this point which could cause a stroke.

On Saturday, the doctors say that they noted some improvement how ever little they were and that if things were going to improve it would be a matter of days and the same if they were to deteriorate. But they said out of 6 cases they had seen only 1 person had survived and that his odds were more than likely 20-50%. They had taken him for a cat scan to see if there was any improvement with the antibiotics but none were really noted but it wasn't worst. What hit me the most is that they say usually a normally healthy person resists the fungus but a person with diabetes is considered to be a person with a suppressed immune system and that most persons with diabetes after 10 years usually have some kind of problem with their kidneys. That hit me even harder because my 3 year old daughter is also type 1 diabetic since last year. Had he not been diabetic he might have not even gotten sick.

Anyways most of us were planning on returning home on Sunday afternoon and return on shifts to stay with his wife at the hospital. That day the hospital staff never really let us in to see not wanting to stimulate him too much and then they said we are going to wash him and shave him which we found odd since they said that that medication would affect his coagulation. Why take the chance of cutting him with a razor??...now we know they were preparing him for us to see him a last time.  We were all hoping for a recovery...but at 1:30 a.m. January 28th, my husband calls me saying hurry up and get here they are performing CPR on him and that he had been taken to the room to hold his hand while they tried to revive him...he had to get out after the second time they shocked him.  We all got there and my mother and father and his wife and her mother got to be there when he finally died a 1:57 a.m..

A new doctor which we hadn't seen before came in to talk to us after my brother passed away and said that he had seen my brothers charts on the Friday and that he had known he wasn't there anymore, at least that his brain had been deprived too long of proper oxygen levels...which is exactly what I had been asking all along.

We are trying to get this noted with Health Canada and to have it marked as a work related death and that all those men that work in the Forestry Field whether it be hauling, harvesting or even the mill workers be aware of this Blastomycosis and that safety guidelines be in place. This should be a reportable disease.

Within 5 days we lost a young family man that was recognized for his "joie de vivre" , and extremely gifted and involved in sports as a goaltender in hockey, shortstop in baseball and renown for his sense of humor.

But after all this is done. I comfort myself in the fact the he is no longer suffering and that he doesn't have to battle with diabetes anymore and that we have someone watching over us and if he tends to us like he did his nets, we will surely be well guarded. When our turn comes he'll be there to greet us.

In memory of Ghislain "Gaga" Saucier

Thank you

Near Hearst, Ontario

« Last Edit: April 15, 2007, 12:10:33 PM by Doris3175 »
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Lisa

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Re: Blastomycosis in Northern Ontario
« Reply #1 on: February 22, 2007, 07:50:36 PM »

Oh what a heartbreaking story. I'm so so sorry you lost your brother.
I wish Ontario would make Blastomycosis a reportable disease. Then maybe more doctors and veterinarians would know more about the symptoms and possible treatments.
Thank-you for sharing his story.

Lisa
Sault Ste. Marie
« Last Edit: February 22, 2007, 07:56:54 PM by Lisa »
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jenjen

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Re: Blastomycosis in Northern Ontario
« Reply #2 on: March 02, 2007, 08:38:18 AM »

I'm so,so sorry about your brother. Blastomycosis should be a reportable disease,as it happens more often than we are told. Doctors are not aware of the symtoms in most cases, and have a bad habit of reading previous misdiagnosis and looking no further. I know this as I worked in the medical field and it happened to me. This is not something new, but seems usually misdiagnosed. There should be standards in Ontario and Manitoba. I myself am still suffering from blastomycosis and have never been to Ontario. I got it in Manitoba. I will try to post my story as I am new to this site. I tried to die from this misdiagnosed disease on more than one occation, I guess I was just lucky. But I have scares all over my body (especially my face) yes I have pictures,but I still have a hard time looking at them. My blastomycosis started in my lung and lay dormant(painfully) for years, it then transformed onto my skin. At times 50% of my body was bandaged, I could not bath as water makes it worse,I couldn't go out into the sunlight as it would cause new blisters and the heat was very painful. For 2 1/2 years I lived in the dark,hardly leaving my house. I apoligize if I sound bitter but I'm still learning to live with the scares inside and out.
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Doris3175

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Re: Blastomycosis in Northern Ontario
« Reply #3 on: March 02, 2007, 09:21:10 AM »

Thank you for your replies....

I check regularly to get more information about Blastomycosis.

We now know of 2 more cases in our area, a teenager who had it on her skin starting on her foot and we also know now of a baby dying from it. She had symptoms of a gastro and the autopsy reports stated Blastomycosis as cause of death.

We are all still trying to cope with our lost as it happenned so fast.  I research and write I guess as a way of grieving.

Keep the information coming!!!
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Doris
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Doris3175

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Re: Blastomycosis in Northern Ontario
« Reply #4 on: July 24, 2007, 08:49:46 AM »

Almost 6 months already!!


I have had a lot of visitors but not too many replies...

Hopefully something can be done to promote awareness for this fungus....

« Last Edit: July 24, 2007, 08:53:13 AM by Doris3175 »
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Doris3175

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Re: Blastomycosis in Northern Ontario
« Reply #5 on: July 31, 2007, 10:56:27 PM »

Another Blastomycosis death in Northern Ontario....

A 40 year old man from Dubreuilville died last week from Blastomycosis....

Something has to be done.... >:(
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Connie

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Re: Blastomycosis in Northern Ontario
« Reply #6 on: August 16, 2007, 02:12:46 PM »

Hi Doris.
I am a few hours from you. I did hear about your brother and about a few others that got it around the same time as your brother. One of my coworkers is originally from Hearst and still has family there. She was the one that told me. I also beleive he was a friend of my cousin who lives near kapuskasing.
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Ben

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Re: Blastomycosis in Northern Ontario
« Reply #7 on: September 14, 2007, 03:14:15 PM »

I'm new here; I just lost my brother on August 4th; he was living in Kentucky (near Cincinnati, OH).  Sounds a lot like your situation....he was gone very quickly.  In fact, I never heard the word blastomycosis until after his death.  He was being treated for pneumonia and had been in the hospital for four days when a family friend suggested he get tested for a "fungus" based on a story she'd heard.  We requested the test and heard nothing more about it.  He died two days after the test was done, and when his nine-year-old son got sick and was ALSO diagnosed w/ pneumonia, we freaked out....after two weeks the hospital called to tell us the results of the fungal test were positive for blastomycosis, and based on that the doctors at the Children's Hospital in Cincinnati began treating him w/ the medication (not the strongest one; can't remember the name of it).  My nephew has been released from the hospital but is still receiving medication.  They suspect it was contracted during a camping trip.  What a nightmare it's been.
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laur74

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Re: Blastomycosis in Northern Ontario
« Reply #8 on: January 08, 2008, 08:46:42 PM »

I am very sorry to hear about your brother.  It was very hard for me to read your story.  I am also from Ontario.  My family went through something very much the same In August of 2006.  Both my husband and child were diagnosed with Blasto.  My husband was very close to death, spending time on Life Support in the ICU at a hospital out of town.  While i was with him i had found out from  family members who were taking care of my children at the time that one of my children were being admitted to the local hopsital with a diagnosis of pneumonia.  Seeing that my husband was starting to turn around for the better, I had to rush home & prepare for much of the same with my 10 year old.  Once the doctors heard about my husband they tested my child & found out she was also positive for Blasto.  Thankfully we caught my childs Blasto in the very early stages and she responded well to the medication.  It is over a year now & both are doing very well.  I thank god everyday.
« Last Edit: January 08, 2008, 08:51:16 PM by laur74 »
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luvmyjacks

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Re: Blastomycosis in Northern Ontario
« Reply #9 on: January 09, 2008, 07:22:20 AM »

I check this part of the forum regularly and read your stories with sadness.  The awareness campaign is only slowly getting started but with help from all of us we can keep the push going.  The April edition of Dogs in Canada will highlight the limited knowledge and broadening scope of this disease.  My dogs contracted blasto some time last summer and one died while the other was on the brink for ages.  Where exactly are you in Ontario?  We cottage and boat on Georgian Bay and frequent Honey Harbour, Penetang, and Midland.  So far I haven't heard of people from these areas contracting blasto and the ones north of that area are often people involved in some aspect of the wood/timber industry.  Can you give more details?
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Doris3175

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Re: Blastomycosis in Northern Ontario
« Reply #10 on: January 09, 2008, 09:17:33 AM »

We live in the Kapuskasing, Hearst area....about 9 hours north of Georgian Bay area. Before this we had never heard of Blastomycosis, in our area except for the Dryden, Kenora ..more westernly than where we live. But as people learnt of what killed my brother a couple stories popped up...a young girl had contracted it on her foot and then a 9 month old baby died from it  and this past year another man living a couple hours away died from it too. Then talking with a woman that works in the vet office I learned that they knew of many cases of blasto in dogs in the Longlac area(still a couple hours west of where we live ...From what I gather up to 1989 Blastomycosis was a reportable disease but was taken off the list for lack of occurence but now it seems to be on the rise again....might be the temperature changes we've been experiencing.
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luvmyjacks

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Re: Blastomycosis in Northern Ontario
« Reply #11 on: January 09, 2008, 04:21:36 PM »

Thanks for all the info.  I think there is a lot of blasto out there but the dogs often die before it is confirmed.  If they are older it is easy to say they have cancer (a mass on their x rays) or pneumonia.  Maybe it's the same with people but I have a horrible feeling there is a lot more than is being diagnosed.  Since my dogs contracted it I have discovered many dogs were lost this summer to strange illnesses with blasto symptoms.  Hopefully others will weigh in on this topic.  I advised the local coroner in the Collingwood area and he has advised the local health units to be on the lookout for blasto symptoms in patients as so many vacation in the Penetang area.
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Doris3175

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Re: Blastomycosis in Northern Ontario
« Reply #12 on: February 07, 2008, 10:26:55 AM »

Heres a little video that I put together in memory of my brother....one year has passed already

http://www.youtube.com/watch?v=WM0zwoRmvRM
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