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Author Topic: Support needed - newbie to Blasto...  (Read 1021 times)

Jen110103

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Support needed - newbie to Blasto...
« on: December 21, 2007, 07:14:16 PM »

Hi all!  I'm a newbie here!  I've been reading a bunch of the posts on here, and so far you all have provided a lot of great info!!  I'm just curious how my boxer Louie's symptoms match up to what everyone else has been experiencing...  So, here's my story:

Louie (who will be 10 in January) started having a cough during this past summer.  Several vet visits later they decided that he just had some fluid on his lungs and an enlarged heart.  So, since July he's been on a water pill (furosemide) to help the fluid stay down.  Well, for about 4 months, the cough stayed around and each time the vet just said it was attributed to his heart problems.  A few weeks ago I took him into the vet because it seemed like he was having problems breathing and coughing a lot - and they took a new x-ray.  This time they ended up taking two from different angles and they discovered that he had a mass the size of a baseball in his left lung.  After taking a sample of the mass and sending it to the lab, they came back and suggested that he might have blasto.  They took some more samples from him (a urine sample and a few samples from his lymph nodes too), and now we're just waiting to see what they come back to say (if it really is blasto).

For the time being though, we went ahead and got him started on the ketoconazole.  Since he's been on this, he's hardly eaten anything.  From what I've read it sounds like this is pretty common at first...  So, I'm just trying my best now to get him to eat anything.  He also always seems to be shivering.  I try to keep him warm with a blanket or heating pad, but he never stays put.  But, that's basically his story.  He still coughs a lot and sleeps quite a bit (but he's an older boy, so the tiredness I'm not surprised about)...

I'm just curious if anyone else has had similar symptoms to what he's had...  The mass in his left lung is what really worries me.  And the lack of appetite right now too.  I'd really appreciate any insight you nice folks can provide!

p.s. Thanks so much for providing a great forum for people like us to communicate together!!
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luvmyjacks

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Re: Support needed - newbie to Blasto...
« Reply #1 on: December 21, 2007, 09:30:21 PM »

Oh No!  I am so sorry to see you here on this forum.  It is heartbreaking.  But I'm not sure why they didn't go right to Itraconazole.  It seems to be the most effective and latest version of the anti fungal drugs.  your poor boy has all the symptoms and needs calories, water and more calories.  Don't let him over exert he needs to take in and use as much oxygen as he can.  I put Will into intensive care for several days so he could be on oxygen.   I am leaving in the morning for two weeks and so pray you will read all these posts and learn as much as you possibly can.  Tming is everything and you have a lost a few weeks.  Please check in constantly people post at weird hours due to the different time zone.   Just love your sweetie boy as hard as you can and good luck, God Bless
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Jen110103

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Re: Support needed - newbie to Blasto...
« Reply #2 on: December 21, 2007, 09:53:12 PM »

Thanks much for the good wishes!!  I just wanted to let you know why they didn't put him on the itraconazole...   At the time, all they had at our vet was just the keto...  and my vet later looked into how much it would cost for the itra.  She called me back last week and said that just 5 days worth of the itra would be over $300!!  Now, I can't tell if it's mostly just because I have a 90 lb. dog, or what... but that was a little high I thought!

I plan on taking Louie to the vet in the morning to see what else they say about that medicine.  For now, he's being cooked up some hamburger & rice as I type!  Hope he'll eat it!!   :)
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luvmyjacks

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Re: Support needed - newbie to Blasto...
« Reply #3 on: December 22, 2007, 12:07:42 AM »

Glad I checked.  The first time I got the Itra it was just under $500.  This time I told her to please try to find another source and I'm paying $125 for two months, taxes and shipping included.  Check some of the posts here if you are in the US because you can get it for a really good price from Road Runner Pharmacy in Arizona.  One of the posts gives the pharmacy number and my vet in Canada tried but had problems only becaue they don't ship over the border anymore.  Please try.  It is the latest anti fungal drug and is REALLY effective.  Good luck.
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evayola

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Re: Support needed - newbie to Blasto...
« Reply #4 on: December 22, 2007, 11:08:14 AM »

First off, I am so sorry to see anybody new here but I hope that all of our words will help you as much as they helped me! I see that you are in IL which they consider the "blasto belt" and I am from IL as well. I am sorry about Louie. Marge was put on itra at first but we switched to fluconozole because it attacks the eye blasto better and I was paying $500 for two weeks of itra through cvs. I also ordered from Road Runner Pharmacy but Marge wouldnt eat when I switched her to the compounded form. Her tummy couldnt tolerate it. Her fluconozole is tablet form from WalMart and I am only paying $43/mo!!!!!! Marge is a st bernard and weighs 145 lbs now so we were shocked at this price.

It is VERY normal for Louie not to want to eat. Marge didnt want to eat either for a long time. We force fed her. We would put the food in her mouth and keep it closed until she would swallow. There is also a high fat/calorie paste that we got at the pet store and we would smear it on her gums and her paws and she would lick it all off. Marge was never shivering, she was always hot to the point where we had to cool her belly and paws with cold rags. Definitely read over all the posts because they will provide a lot of good info. Any questions or anything you need please let us know. Blasto is such a horrible disease and timing really is everything. Marge's lungs were so infected that the vet didnt even know if Marge was going to make it! She is making it and I hope Louie fights just as hard. Do love him as much as you can and give him lots of support. It is very important. Remember lots of fluids and calories. My vet said to feed Marge whatever she would eat. Best wishes!
Eva Dan Marge Homer Snoopy Prada Kitty
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“There are bad times, but thats okay, just look for the love in it, don't burn the day away.” - Dave Matthews Band

Jen

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Re: Support needed - newbie to Blasto...
« Reply #5 on: December 22, 2007, 11:33:18 PM »

Welcome-
  Sorry to see what looks like yet another misdiagnosis.
  Luckily you've found what I think has become the most comprehensive Blasto treatment/support site on the net.  The combined experience here is contributing to other dogs getting well.
   When Dirtbike was diagnosed in April, I came here and found mostly depressing and frightening stories that didn't end well.  Our vet told us not to get our hopes up, and everything looked very dismal. Wilson was the only dog hanging in there at all.  As you can see from prev. posts, Dirtbike is now healthy and thriving.
   Lately we're seeing progress in newly diagnosed animals.  Someone said in another post that we seem to know more about it than the vets. I'd advise anyone who notices a cough in their dog to have them checked for Blasto FIRST, because it's everywhere.
   So - dive in and check us out. We're all here for you, we know how heartbreaking it is, and we'll do our best to help.  Love your dog, and keep strong.
Best to you-
jen
(We used Pet Health Pharmacy in AZ for Itraconazole, about the same price as Road Runner.)
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Wilson3

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Re: Support needed - newbie to Blasto...
« Reply #6 on: December 23, 2007, 11:16:04 AM »

sooo sorry you 2 have to join  this board
the pet  health pharamcy is where we also ended up getting wilosn meds much much cheeper the itra works the best from what it sounds liek if you can ask you vet about ordering it
wilsona was $175 a month to $80.40 for to months including shippping
wilsons ears would alwasy seem really cold and his body to I would massage his ears and his body to help get the blood going through his body i think becasue he wasnt moving around much and being so sick that the blood had to get moving somehow so thats what i did he 2 had blasto for about 6 months before he really started to showw any signs blankets are good heating pad no tto high hug him tell hi you love him and he has to fight be stronge for him i know i have said this on other posts but this always helpe dme to i would sit with wilson and hold him pet him cry and laugh about things we have done and things i wanted to do with him yet give him somthing to fight for it is up to them on how hard they want to fight try to keep food in the tummy as much as possible even if it is small amounts always stay positive and let them know you love them and are there for them
read through all the posts lots and lots of great ideas i know there is a ton of them but it really helps
keep us posted
wilson3

 
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lisa marr

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Re: Support needed - newbie to Blasto...
« Reply #7 on: January 07, 2008, 04:48:02 PM »


Just a quick note: My dog (a 2 y/o collie/cattle dog cross) Beau was first diagnosed with a lung mass, thought caused by a foreign body aspiration.  When the vet first saw the x-ray, she said that although it looked like cancer, she would "bet her arm" that it wasn't in that age dog.  A month later (after different rounds of medication to treat pneumonia from the presumed foreign body), a sking lump under his chin was biopsied: Blasto.  By then he had swollen lymph glands in his armpit/nect areas, a swollen toe, a weeping lump on the tip of his ear, and numerous other small skin lesions.  Then the lung mass was attributed to Blasto-pneumonia.

After being on itraconazole for about 11 months, his chest xray was back to totally normal!
     Best of luck!    Lisa marr and Beau
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evayola

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Re: Support needed - newbie to Blasto...
« Reply #8 on: January 07, 2008, 08:24:38 PM »

Congrats! I cant wait til the day that we can confidently take Marge off all meds and say that she is blasto free! She is doing really well though!
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“There are bad times, but thats okay, just look for the love in it, don't burn the day away.” - Dave Matthews Band

Jen110103

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Re: Support needed - newbie to Blasto...
« Reply #9 on: January 08, 2008, 01:28:02 AM »

Thanks for the info on Beau!  So glad everything turned out good for him!!!

Louie's been losing a lot of weight from being on the keto, but he's starting to eat a little more lately.  His cough amazingly was gone the last few weeks, but it's started back up again.  Last I talked to the vet she got the official results back from his urine and lymph node samples and they were inconclusive - not really sure if it's blasto...  So, at this point, we're just scheduled for another x-ray in a week or two (after being on the keto for one month) to see how he's doing.

Wish us luck!!

Lots of boxer drools from Louie!!

Jen (& Louie)
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BRANDO

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Re: Support needed - newbie to Blasto...
« Reply #10 on: January 10, 2008, 05:49:33 PM »

Hi Jen and Louie
I HOPE FOR THE BEST FOR HIM....
My golden lab, Brando had it twice. He's a great 6 year young dog who loves to play!
Once in his lungs and the second time in his paw. 
Luckily, with Intraconazole he has made it and is a survivor.
I did go through a Canadian pharmacy because the cost of it was too much.
Go with your heart and follow it.... 
I read the other replies and they are very knowledgeable.
I'll keep you both in my prayers.
Brando and Sharon from Wisconsin
PS:  Brando goes back in a few weeks for his final urine check on his blasto..... I keep my fingers crossed.
He seems 100 percent normal and full of life...
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mhitesman

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Re: Support needed - newbie to Blasto...
« Reply #11 on: January 10, 2008, 07:38:26 PM »

My 4 year old intact male golden retriever was diagnosed with a weak positive blasto (urine aspiration) last September.  His lungs and all internal organs were clear, but his right eye was extremely infected and he had secondary glaucoma blindness by the time we were to a vet that diagnosed correctly -- in the span of two weeks overall.  We tried desperately to save his eye and even dared to hope that some vision would return as he is fantastic field trial competitor ... and we selfishly did this for us, i guess.  I guess it takes a long time to settle in that we were fighting not for his vsion, but for his LIFE.  Anyway, he was put on itra, which is indeed very expensive.  His eye ruptured and required emergency surgery.  Because of the blasto in his eye, he was not a good candidate for a prosthetic eye, so it was sewn shut.  I think part of me was lost that same day, too.  But I am so extremely grateful that we have him.   The dogs often get much worse before they start to get better, and it is important to never give up hope, keep them as comfortable as you can, give them lots of love, and keep them drinking and eating == whatever that takes.  Feed the pills with food.  Fatty food.  I removed the granules from the capsules and put them in a piece of bologne luncheon meat, which he loved. 

Four months later Comet is off meds and starting to get his high energy back.  He is happy and healthy, and his blasto retest last week was negative.  Of course we are fearful it will come back ...  Comet was on meds 4 months but some dogs are on much much longer.  Comet's internal organs and skin were clear.  Only one eye.  The meds, themselves, have nasty side effects and can be toxic to the liver, so he was tested every two - four weeks while he was on the itra.

We chose to use the itra rather than another antiobiotic or a compounded itra such as is available at roadrunner.  We paid about $700 per month for his meds.  If we could not have afforded the itra (sporonox) we would have chosen the compounded itra from Roadrunner pharmacy, which is very affordable (like $90/month) over ketra. 

Today the vet called to tell me she diagnosed another young golden yesterday -- affected in the eye as was Comet.   The owner is looking for support and will call.  When he does, I will refer him here for the wealth of info on this site as well as the wonderful support offered here. 

The people here helped save my dogs life and also saved my sanity.

Good luck.  Don't give up.  Comet is a survivor, and he is not the only one.  You can beat this thing!
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