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Author Topic: Teddy Came Home  (Read 1053 times)

teddysmomanddad

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Teddy Came Home
« on: December 06, 2010, 09:18:41 AM »

Thank you all so much for all your support. Last week was the most difficult week for Wendy and I ever.

Our Teddy bear came home with us on Sunday. He was very happy to go in the car but his eyes were very wide and he looked a little scared. His breathing is definitely labored as it sounds like from all of you that it will be for a while to come. He is eating and drinking well right now.

We are both very worried about him and it breaks our hearts to hear him struggling to breath.  :'(
Now we have to go searching for better prices on his Itra, though I'm sure someone has posted it somewhere in the back logs here.

He goes back for a chest x ray on Wed.
Wendy is home with him today.

Our other dog Wylie, who is blind due to a whole different problem, was a little strange with her little brother when he came home. I think with all the other dogs in the hospital Teddy's smell must be a bit confusing. Not to mention the bad breath from the fungus. She'll figure it out it's her baby brother soon enough.

Now we have two very special needs doggies!

Again, thank you for all your help, I need to go back through and reread a lot of them, some of you posted so much good helpful info. It means so much that otherwise strangers would spend the time helping us so selflessly!

Here is Teddy with a worried mama when he got home and back on his couch

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Sadie123

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Re: Teddy Came Home
« Reply #1 on: December 06, 2010, 09:57:00 AM »

Oh how heartbreaking!  But Teddy has a chance.  Keep reminding yourselves of that.  Reading back through the stories, I can see how difficult it was for these dogs and their parents, but one month or 2 months out, it was all worth it as their dogs got better and better and became blasto free.  Stay with him, give him all the love you can, and keep him fed.  Nutrition is important.  Remember with every labored breath after another, his body is using more energy than normal, so food is very important here. Go buy rotisserie chickens, grill out some steak, throw a roast in the crockpot, stock up on peanut butter, ensure, and cheese.  The peanut butter is good for the meds (fat content and easier to get him to take it when you spread it on the roof of his mouth).  There is so much info on here that can help you care for Teddy and lots of support for those rough days.  Be prepared for lots of ups and downs.  They tend to backslide alot.  Don't let your vet do too many chest x-rays.  They tend to get very expensive and it's extra radiation.  From what I've read on here, the dogs don't show improvement in lung function and clearance of blasto for quite a while, so if you are getting another one done this week, it will most likely look the same and not any better.  I believe some have had their dog's x-rays taken 3 months out and it still showed up the same.  Save your money for the treatments and just use your watchful eye for signs of improvement.  When his lungs get better, he will be more active and will breathe easier.  I think the MiraVista urine test is more accurate for showing improvement in the Blasto anyways.  Don't let your vet talk you into weekly x-rays.   It's not going to give you any more information.  Just do them when there's a change, either for the good or for the bad.  Read more stories on here, and you'll see what I'm talking about.   Good luck and hang in there.  Praying for you all!!

Shelley
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benniesmom

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Re: Teddy Came Home
« Reply #2 on: December 06, 2010, 10:06:34 AM »

So good that Teddy is home. here is where I order Itra that we use, which is worth the wait since it is so long a treatment and costs sooo much from the states..it takes about three weeks. RX Pharmacy World in Toronto, Ontario......... It's $1.19 A capsule for generic, the beaded stuff.... since you will need it for a good long while, it is worth it....... 120 100mg capsules costs 160 bucks.... My vet recommended looking into Canadian pharmacies. there are others that cost a bit more, but they may be faster, as well........ At RX Pharmacy World you can also get Sporonox, the original brand name for just under $2 each capsule. Both are manufactured overseas, and have to go through the airport security business, which is slowing things down for everyone.....SO I buy what I need until Friday, when my shipment comes, from the local pharmacist, not from any of the biggies, like Wlamart or Target.. he little independent locwal guy has msome flexibitlity and gives me a much better price, for what that's worthj. it is still way too much for long term...

A lot of people here use the Pet health Pharmacy in Arizona. My vet spoke with them and wasn't convinced about their compounded, the powder in a capsule, unbeaded, but apparently they do have some beaded generic......... the beads are key, as that coating makes the Itra have the bioavailability .....

You'lll get lots of answers, I'm betting.. and GOOD Going Teddy!!!
Barb, Bennie, and the unafflicted, Miss Heathergrace
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apope43

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Re: Teddy Came Home
« Reply #3 on: December 06, 2010, 11:13:21 AM »

Sorry I have yet to welcome you to our little family -- sad that you are here, but grateful you have found this board.

I understand completely how scary it is when the breathing is labored.  And it's not just the strange smells from other dogs that is making Wylie nervous to be around Teddy.  Izzy is our blasto pup, and other dog Casey had a really difficult time adjusting to her illness for the first couple of weeks.  It's a different smell, a different personality, scary breathing...they don't understand why there's such a difference in their buddy.  We ultimately made the decision to send Casey off to visit friends for a week or so until we had the worst of it out of the way, and it was the best decision for us. If you keep Wylie around for the initial treatment, be sure to try and spend some time one on one with her to keep her as reassured as possible.

Sadie (Shelley) is right - don't be disheartened if the chest xray comes back with little to no change -- or even worse.  It takes at least three months to kick blasto, and usually longer than that.  We decided that unless Izzy's breathing was in severe distress that we weren't going to do another x-ray. 

I had a couple of other suggestions as you get through your first week.  First, Shelley's right, fatty foods are the way to go.  We were really lucky with Prescription i/d - it had full nutritional value, was very rich and meaty smelling, and we could get Izzy to eat a good bit of it most of the time.  We also had success with ground turkey, rice, and a can of no salt green beans -- all have nutritional value for the pups without being too high in sodium, which is bad bad bad for pups, especially when their systems are upside down already.  Scrambled eggs (or a raw egg if you have no choice, Barb had to resort to the eggs a few times) are good too. 

Secondly, for pills. A slice of American cheese will do wonders, it’s rich and smooth and they practically swallow it whole.  The calcium is good, and the cheese will help avoid the gastric issues a lot of dogs have as they start on the anti-fungals.  The peanut butter works well too, though I always feel bad when they’re trying to lick it off the roof of their mouths. 

Thirdly, breathing wise.  I’m sure your vet has talked to you about signs of true respiratory distress.  Izzy would sit up every so often and start panting heavily.  She also had a lot of rapidity and the occasional cough as she tried to get oxygen in her lungs.  It’s counter-intuitive, but these are all signs that the medicine is doing it’s job.  When the breathing gets fast and/or labored, check Teddy's tongue and gums.  Pink, you're good.  Blue, get to the vet.  Blue means oxygen deprivation.  Also, get used to taking his temperature.  99-102 is normal, 102-105 is high, and if you start approaching 108 start to worry a little.  Anything over 108 can mean organ damage, and a trip to the vet is needed.  To help keep the temp down, get a bunch of ice pads and have them on the ready.  Damp towels help too.  Cool off his tummy and the pads of his paws and you'll bring his temperature down.  We could bring Izzy down by almost three degrees when her fever got bad.

The anti-fungals work in a three step process.  First, it works to sterilize the fungus to stop it from reproducing.  This sends the fungus on the run, grabbing hold of anything possible to stay alive.  By the time there is a diagnosis, typically there is at least some lung involvement, and that’s the first place the fungus starts grabbing on to keep from dying.   Second, it starts attacking the fungus to kill it off.  This is when you’ll see the fungus start to ‘run’ to other places, and gather in groups (we call them lumps) to protect itself.  For Izzy, this resulted in a swelling in her left leg.  Third, it starts to kill of the fungus, slowly but surely.  This is frequently when you’ll see skin lesions as the fungus eats through the skin to escape the medicine.

Now, here’s where it gets frustrating – those steps can come in any order, at any time, in any number of ways.  Bennie first had a lump, with little lung involvement.  Izzy had involvement in her eye, followed by a skin lesion, and then lung involvement.  It all just depends on where the blasto has taken hold first.  The best advice I ever got through this when I asked if Izzy’s progress was normal was this --- NOTHING IS NORMAL.  The great thing about this board, however, is that for every symptom, there is a blasto family that has dealt with it and has advice on how to treat it. 

One other thing about the breathing.  What has worked for Izzy and some other dogs is a form of doggy-yoga or doggy-massage. When Teddy starts panting heavily or his breathing goes up, try to calm him yourself first. Get him to sit up, stand behind him, and lift the front part of his body from under his front legs.  Not all the way up, just enough to open up the chest cavity.  Our dogs frequently don’t have the energy to sit up straight, which reduces their oxygen intake.  If you can physically do it, looping one arm under his legs to open the airway, and using the other to stroke from throat to chest, then chest to belly helps calm as well.  Prednisone helps the inflammatory response, but use it with caution, because it does counteract the anti-fungal.  We were on 10mg/day for the first 7 days, then removed it completely to allow the anti-fungal to do its job.

Be sure to call around on the itra, and use the resources on this board to find what works for you.  Every pharmacy is different.  We are on fluconazole because of Izzy’s eye involvement.  We pay about $68 for a month’s supply at Costco.  The same medicine at Walgreen’s (even with a discount card) is a whopping $1008 -for generic.  And no, I’m not kidding, it was really that much of a jump.  Itra costs are even higher and more varied.  Do your research and you’ll be fine.

The last piece of advice I have for you is to be sure to get some sleep.  We spent a horrific few nights with Izzy waking every 20 minutes to check on her breathing, give her medicine, etc.  Any time she stirred, or got too quiet, or breathed a little heavy we were jumping up and running.  We finally made the decision to trade off nights – Ken kept her in the bonus room with him while I conked out, and the next night I did the same for him.  It’s a wonder what a full night’s sleep will do for you.  It is an emotional roller coaster, one I wouldn’t wish on anyone.  We asked ourselves a million times if we were doing the right thing, and now, a month in and some marked improvement, we are so thankful that we did. 

Ask questions of the board, learn the search facility, and don’t hesitate to private message any of us.  We are here with you and understand what you are going through.  Whatever we can do to help, we will. 

Best of luck – hang in there and keep us updated!
 


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Sadie123

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Re: Teddy Came Home
« Reply #4 on: December 07, 2010, 01:26:01 AM »

You all have done a wonderful job with Izzy.  You have so much valuable information and experience to share.  I am so happy that you are getting this blasted blasto beat!!!
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apope43

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Re: Teddy Came Home
« Reply #5 on: December 07, 2010, 10:20:58 AM »

Lord knows we're trying -- there's still a long way to go!  I'm encouraged by her positive signs, but get nervous when I hear from other families that are two or more months in and have some setbacks.  Everyday I'm checking her for new lumps and lesions, terrified of what I find!  :-\
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Sadie123

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Re: Teddy Came Home
« Reply #6 on: December 07, 2010, 02:15:25 PM »

Just remember, someday there will be ups and ups and ups without any downs.  So glad you are still having the ups. 
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teddysmomanddad

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Re: Teddy Came Home
« Reply #7 on: December 07, 2010, 02:36:03 PM »

And Teddy is back in the hospital. His breathing was in the 80s and we were just too worried. They just called and said they had him on oxygen but he still hasn't calmed down. I don't know how we are going to get through this. I just don't know what to do with him. I want him to pull through but I feel HORRIBLE asking him to tough it out for next who knows how many months. I HATE THIS!!!
We can't afford any more trips to the ER. I don't know what to do.
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apope43

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Re: Teddy Came Home
« Reply #8 on: December 07, 2010, 02:48:35 PM »

The rapidity is because his lungs are full of both blasto and the anti-fungal, and as the blasto starts to sterilize it takes lung tissue with it.  The oxygen will help, and he may be getting enough on his own, it's just hard for his lungs to expand fully because of the fungus.  Imagine the world's worst asthma attack - that's what happens when the blasto takes hold.

Ask the vet what his saturation is on oxygen and then without -- that will give you a better idea whether this is just panting because of the medicine working or if he truly is not getting the oxygen he needs to live.  If he's not getting oxygen, then go with your gut.  If he is, I'd be hard pressed not to tough it out.  Maybe prednisone to reduce the inflammatory response temporarily until his body gets used to the anti-fungals?

REMEMBER - THE FIRST WEEK IS THE WORST!  You can do this, and he can too!  He'll tell you when it's time, and it sounds to me like he's still fighting.  Think of the anti-fungals as radiation treatment or chemotherapy for cancer -- you get worse before you get better.  I spent our first week in tears asking myself the same questions - can we do this, should we do this, are we being selfish?  Our dogs know we're doing everything we can for them.  HANG IN THERE. 

Please private message me if you need anything.  I'm willing to be available by phone as well.
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teddysmomanddad

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Re: Teddy Came Home
« Reply #9 on: December 07, 2010, 03:05:02 PM »

Thank you everyone for taking the time to write, I guess our main question now is, do we bring him home and hope for the best using all the advice we have gotten here? He is back on the steroids for now but probably not when he comes home. And how low can his oxygen level go before there's no return?
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apope43

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Re: Teddy Came Home
« Reply #10 on: December 07, 2010, 03:17:49 PM »

Can they give you prednisone in a pill form?  Izzy took one 10mg tablet once a day and it did wonders for her breathing....what has the vet said about Teddy's oxygen saturation levels?  How is he getting oxygen?  Is it a line or a tent?
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apope43

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Re: Teddy Came Home
« Reply #11 on: December 07, 2010, 03:21:41 PM »

PS - 80 is high, but dogs have made it through in the 60s-80s.  Shelley (Sadie123) might have some advice on the rapid breathing, I think Sadie was up to 80 at one point, though for a different reason.  We only got up to between 60-70.
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teddysmomanddad

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Re: Teddy Came Home
« Reply #12 on: December 07, 2010, 04:27:54 PM »

I feel like I'm going to snap. This is Scott now. We've been bouncing back on this loggin.
Thank you for your encouragement. Very much.
His o2 was at 90% this morning when we brought him back in to the hospital, we thought it would be worse, it was in the low 70s a few days in. Now it's back up but his breathing is still very bad. He is on tube oxygen, he wouldn't go inside the tent.
We just don't have any more money for trips for oxygen and it makes me sick. I don't know if I'm supposed to let him be in the house with us or put him down? He's my best friend and I can't imagine life without him. I also can't make him suffer. I can't imagine he can survive weeks or months with this type of breathing! I tried to breath that fast to get an idea of what he's going through and I couldn't take it!
This is just the most horrible thing ever and it keeps getting worse and worse. They don't deserve this. I'm falling apart.
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benniesmom

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Re: Teddy Came Home
« Reply #13 on: December 07, 2010, 05:27:06 PM »

oh gosh. I feel so bad for you. When my Jakie had congestive heart failure, (he had doggie muscular dystrophy and the heart failure comes late in that.....) and was breathing so hard, it tore me apart. I knew, though, it was the end for him..... with this Dang Blasto it is just such an awful dilemma......... Bennie doesb't have much of a breathing problem....... I don't know if I could stand it if he did.... You have to go with your intuition on this......... it seems...... Sending love to you and you family, two legged and four..
Barb and Ben
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Sadie123

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Re: Teddy Came Home
« Reply #14 on: December 07, 2010, 05:41:06 PM »

Scott......please don't so this to yourself.  It's scary and hard - I know.  You tried breathing fast like your dog and I am sure it wore you out!!  Remember.....dogs pant - they pant alot.  They are built for that.  Keep in mind what the respiratory system is used for in dogs.  It's not just for oxygen exchange.  They pant and breathe faster to blow off heat.  Any fever will raise the respiratory rate.  They breathe faster when they are in pain.  Dogs can't sweat so they breathe faster.  It could be possible that Teddy is breaking fever and the only way to "sweat it out" is through breathing fast.  If Teddy is breathing fast but his gums are still pink then it's ok.  If he turns blue then it's not ok.  If he's breathing fast and not making loud noises, it's still probably ok.  He is not going to wear hisself out like a human would.  They can compensate much longer.  Sadie's respirations got up into the 80s and I didn't like it one bit, but it wasn't until she started making noises that I got scared and even more concerned.  

Teddy's oxygen sat was 90.  That's probably pretty good considering his lungs are filled up with blasto.  Remember, he has to compensate for the decreased lung capacity.  One way I checked Sadie's distress level was to try to get her to bark.  Find the one thing that he will bark for everytime and see if you can get a good normal bark out him.  Then you know he's got enough air to do that.  People in respiratory distress can barely talk.  They speak in choppy sentences if they can speak at all.  Now imagine having a human in respiratory distress actually yell something.  They can't do it.  So I tried to think like that.  If Sadie could take a deep enough breath to muster up a good bark, then I knew she was ok.  One time all she could do was growl when she tried to bark.  

Another thing that might help is to ask your vet to do an ABG on him.  That's an arterial blood gas.  It is a very valuable tool to measure a dog's oxygen capacity.  It also provides more important infor such as a dog's Ph balance.  I have no idea how much it costs, but you can get results in as little as a few minutes and should be able to have it done with a simple arterial blood stick.  ABG's are more accurate than oxygen saturation levels.  They are highly used in the ER where I work and can also give you information as to the dog's carbon dioxide level.  When you hyperventilate you blow off too much C02 and it causes some other problems. Then you know whether or not the dog needs oxygen.  

It is so very scary I know.  I did not like Sadie breathing in the 80s and was much more comfortable with 60.  But I would wait a few hours and see if it came down.  Usually with a little rest it did.  But remember when they are panting it's more like 120 breaths per minute or greater.  So 80 doesn't look so bad.  I just tried to picture what a person looked like in true respiratory distress and Sadie was no where near that.  When Teddy starts making lous noises, wheezing, or grunting on expiration or inspiration then you have a more severe problem.  Inspiratory noises are worse than expiratory noises.  Watch the nose for nasal flaring.  Get used to it and then you can notice when it increases.  When a dog is sucking in air they are in trouble.  Sadie did a little bit of head bobbing also, but it was very slight, not too bad.  All this never concerned me greatly in her.  It wasn't until she couldn't rest because lying down was difficult for her that I decided to put her down.  But we had a negative blasto test.  Her bloodwork was highly suspicious of cancer.  That's when I knew she was only going to get worse.  Teddy has a chance to get better.  Hang in there a little longer and give him a chance.  Say lots of prayers, and pray for strength and calmness to be able to watch him be sick.  You can do this.  
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